Goed nieuws mensen!

Eindelijk kan ik weer beginnen met heel positief nieuws. 

Zoals in mijn vorige blog geschreven ben ik donderdag gestopt met het trial medicijn pacritinib omdat het bij mij onvoldoende werkte. Daar voor in de plaats direct vrijdag begonnen met prednison (30 mg) en een lichte chemo. En echt onvoorstelbaar, zaterdag voelde ik me zo ontzettend veel beter! Niet te geloven dat 2 pillen van prednison zo’n verschil kunnen maken.
Blijheid rondom me heen natuurlijk. Het was ook heel spannend. Kilo per week afvallen, alleen maar op bank of bed liggen, zwakker en zwakker worden, om de haverklap in slaap vallen en dat allemaal terwijl je weet dat er nog geen oplossing is gevonden. 
En dan ineens zo’n ommekeer. Ik heb meer energie, kom weer een beetje buiten en vooral, ik eet weer veel beter. De lijn omhoog is gevonden!
Natuurlijk ben ik heel moe, mijn bloedwaardes zijn heel slecht en worden niet beter, maar ik ga vooruit en niet meer achteruit.

De lichte chemo moet mijn weerstand (witte bloedlichaampjes/leucocyten) verlagen. Die is nu 43 en moet tussen de 4 en 10 zitten. Maar de chemo zal ook het Hb en de plaatjes verlagen en die zijn al te laag! 

Komende donderdag de afsluiting van de trial met een MRI, vragenlijst en bloedprikken. Dan kunnen we gelijk zien of ik een bloedtransfusie moet krijgen omdat het Hb onder de 5 komt, of dat de plaatjes onder een gevaarlijk minimum niveau komen waardoor ik bloedingen kan krijgen. 

Ondertussen zijn we heel blij en opgelucht dat het met mij weer de goede kant op gaat. Het is 
echt niet prettig (ahum) als je denkt dat de komende weken de laatste van je leven zijn omdat er geen opties meer over zijn…… 
Heel apart voor mij trouwens om deze voorgaande zin neer te zetten. Er zijn vele lezers van dit blog, en jullie kennen allen inmiddels mijn positieve karakter. Toch ben ik ook een realist en moet je wel alternatieven hebben om positief te kunnen blijven. Gelukkig ziet het er nu weer weer beter uit! 

2.652 gedachten over “Goed nieuws mensen!

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  19. Hallo Hanna,vielen Dank für die ausführliche Review. Der Cream Blush Blossoming steht schon länger auf meiner Wunschliste. Die Produkte aus dem Concept Store Andreas Murkudis kann man auch online ordern….mein Kontostand lässt mich allerdings aktuell noch zögern auf den “Bestellung abschicken” Button zu klicken. Welchen Farbton hast du? Desired Glow?Liebe Grüße°Sun

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  21. Intendevo scuse per guerre (varie, perchè calandoci nell’epoca poteva essere usata per varie guerre) leggi per limitare la libertà individuale in nome della guerra “preventiva”, una società più unita, un “nemico” appunto su cui indirizzare l’attenzione…comunque le ho già scritte sotto e con “america”, appunto fra virgolette, non intendo i cittadini, ovviamente…

  22. I’m sure I’m not the only one to spot the obvious, but aren’t polls unreliable during the festive season? Lots of people are only now returning from holiday and/or have sunburn and a throbbing hangover and are thus unreasonable and likely to lean Tory.Rudd acted pretty swiftly with his Christmas stimulus. In fact, it was one of the more impressive responses to the crisis (Germany is only just beginning to get its act together after refusing to do “crude Keynesianism”….whatever that means). I expect a big stimulus coming up.

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  24. This was really interesting. I am 24 weeks with 1st baby. My husband works out of town during the week, and I am taking 6 weeks maternity leave. I would love to see other newborn schedules for how they compare. I just don’t know what to expect! Expecting the worst but hoping for the best.

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  27. Hi Joe-Just a quick question – In your opinion, what works better for a cake frosting: IMBC or French? Would the French style be too butter-intense (if that even exists) for a cake…does it work better in smaller portions like cupcakes?Thanks much!megan

  28. Hi DeclamInteresting post – and interesting books (I’ve only just discovered yours)Somebody asked me this question recently. The answer that came to mind was that your average crime novel revolves around the question “Who killed Fred?” The mystery at the heart of Dostoevsky is more along the lines of “Who killed everybody?”CheersAdrian Hyland

  29. disse:Olá Aléssya, fico feliz que tenha gostado! Mas mesmo assim, eu acredito que posso ajuda-la, tenho alguns serviços dedicados a compositores nesta pagina: Sempre que precisar estarei a disposição.Beijos e SUCESSO!

  30. dit :Il ya des fois ou je me demande si Dieu existe, comment les gabonais normaux vont dans l’eglise de tomo? J’ai surtout honte de mes freres et soeurs qui usent du dernier flash de conscience qui leur reste pour suivre un tel personnage. Dieu aide nous,ferme sa bouche s’il te plait!

  31. خالد قال:Warning: Missing argument 2 for wpdb::prepare(), called in /home/meflyn/public_html/wp-content/plugins/world-flags/includes/functions.php on line 53 and defined in /home/meflyn/public_html/wp-includes/wp-db.php on line 990 اريد عرض من أبو ظبي إلى الاسكندرية أو القاهرة في تاريخ 15 أو 16 /12 والعوده في 6/1 أو 7/1 وذلك على الإيميل الخاص بي

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  34. Sometimes we have to let everything else wait and choose to be in the moment with our children and loved ones. I’m trying to be more conscious of this. What difference does it make if chores wait while I snuggle and watch a movie with my daughter?Rosann, thanks for visiting and leaving a comment!In Christ,Laura

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  36. Logique pour Rosset on était en 1992.On en reparlera en 2028 quand, sous la pression conjugué des joueurs et des télès les GC se joueront en 2 sets gagnants avec une limite horaire de max 3H pour un match. Genre 2h45 fin du match. Compteur à zéro. Tie Break de max 10mn. sinon remise à zéro et pénalty.

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  42. OTOH, I read the whole article hoping it was going to morph into a discussion of how mental well-being affects sporting/work performance. Which is what I thought they were initially getting at, though might show how much science journalism I’ve been reading lately. But no, it’s just another “let’s poke our noses where they don’t belong” exercise.

  43. and how does this fall under the category of conspiracy? its as simple as this, if you wanna smoke, go right on ahead. we know the hazards but that doesn’t make one lick of a difference so everyone just needs to shut the f*ck up. we know what it does to our health. as for the kids part, smoking is a form of rebellion for many youths. and besides that, it just looks so f*ckin cool!that stuff just P.O’s me

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  49. If it was right to hound Richard Nixon from office over Watergate, than how can it be wrong to send Barack Obama packing over his stupefying, cowardly foul up in Benghazi and its subsequent coverup?

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