Weg stabiliteit :-(

Op 11 juni weer een controle gehad, en zoals altijd is de belangrijkste vraag “zijn mijn bloedwaarden nog stabiel ?”.

Half uur van te voren bloedprikken, en precies op tijd worden we binnen geroepen bij mijn eigen hematoloog. Een hand geven is 1,5 jaar geleden bij het kennis maken afgeschaft ivm hygiëne, dus we begroeten hem mondeling. 
Ook hij begint met de inmiddels bekende vraag “hoe voel je je?”
Nou, dat is simpel. Ik heb het idee dat het allemaal langzaam achteruit gaat en voel me zo vreselijk moe. Hoop dat zeker aan dat laatste iets te doen is. Dan komen de bloedwaarden aan bod. Gelijk met de deur in huis vallend geeft hij aan dat de bloedplaatjes (trombocyten) die voor de stolling moeten zorgen in 2 maanden zijn gezakt van 115 naar 89! Dat is heel slecht nieuws. Gezonde mensen hebben waarden tussen de 150 en 400. Hiermee komt een einde aan de al 1,5 jaar durende onverklaarbare stabiliteit.
De grootte van mijn milt wordt gecontroleerd. Deze is wel groter, maar niet extreem. (De milt kan de bloedplaatjes afbreken, maar ook bloed aanmaken waardoor de milt groter wordt).
Hb is gezakt naar 6.3 (was 6.5) en de witte bloedlichaampjes zijn gestegen naar 5.6. Deze laatste vallen nu binnen de marge van gezonde mensen. Hb, dat voor de energie zorgt is veel te laag. Zou tussen de 8,5 en 11,5 moeten zitten.
Het zorgenkindje zijn dus de trombocyten. De arts heeft niet direct een verklaring voor deze plotselinge daling en geeft aan dat hij dit wil uitzoeken en over een behandelplan wil overleggen met zijn collega’s. Over 3 weken, dinsdag 2 juli nieuwe afspraak. 
Wel geeft hij nog aan dat op dit moment een stamceltransplantatie niet aan de orde is.
Deze weken ga ik gebruiken om te zoeken wat er over deze situatie allemaal op het internet bekend is zodat ik toch voldoende op de hoogte ben. Medicijnen? Epo? Prednison? JAK2 remmers? Miltverwijdering? We wachten dinsdag 2 juli wel even af, maar spannend is het wel.
Zolang het gaat doen we nog heel veel leuke dingen. Zo hebben Marjolein en ik de afgelopen week nog een cruise gemaakt door de Middellandse zee. Zo’n cruise is voor mij als patiënt met lage weerstand en weinig energie, ideaal. Je hoeft niet veel te lopen, het is er schoon, voor nood een arts aan boord, prima verzorging en je ziet ten slotte ook nog eens wat. Dankbaar dat we dit kunnen doen. 
Volgende week een nieuwe blog met het vervolg.

208 gedachten over “Weg stabiliteit :-(

  1. War of Spanish Succession was fought between 1701 and 1714 by France, under Louis XIV, and Spain on one side, and England, the Nesnarlehdt, Denmark, and Austria on the other side. These

  2. I love burgundy! So nice to come home after a week of “island” food and read about that fabulous wine lunch. Oh, don’t get me wrong… we were fed very, very well. But still, Matt is already having Caruso dreams, and then there’s dinner on Tuesday with my London friends at La Tienda. Babuyan!

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  4. Anton,Thanks for the post, all of them actually. Injuries… Unfortunately for the past 6 weeks I've been unable to run due to a minor, but persistent knee injury. Well, finally I felt ready so I hit the trail yesterday. However, the results were disheartening. My knee held up pretty good, but my overall running abilities were noticeably hindered due to the time off. Any advice on staying positive during the 'less than spectacular' recovery? Hope your running during semester break was enriching? Michael

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  9. with deception we will make war.. i think that is israels motif… i suppose lying and deception is all they’ve got left here with regard a response to the flotilla…it is an ugly way to interact on the international scene and i doubt many of their own citizens are aware of the hasbara.. those who are must feel somewhat uncomfortable with the direction this is going on, knowing in advance that israel is not only a state that practices apartheid, but also a state that is immersed in fascism at this point..

  10. Ik vind dat dat prima kan. Ik kan mij heugen dat Chanel dat een paar jaar geleden veel liet zien. Natuurlijk moeten het geen nagels zijn de kort zijn afgebeten, maar mooie verzorgde nagels met een rode lak vind ik er classy staan

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  13. C’est un scandale !!!Cette photo, volée à son intimité, n’illustre en rien les écrits, la philosophie, le masculinisme et la personnalité de Jack London. Elle choque à cet égard et démontre la volonté d’instrumentaliser à des fins purement commerciales le corps des hommes contrairement aux photos consacrées aux personnalités féminines.Je propose de boycotter le blog de passou suite à cette provocation et cet affront aux valeurs masculines…

  14. Ca ne veut pas nécessairement dire que LA fille qui l,intéressera le sera aussi. Elle ne voudra peut être rien savoir justement parce qu’il est brad pitt! Faut pas confondre fan finie avec la bonne femme

  15. their title with an entire new cast of players), or the Arrogantone expresses his displeasure with officiating and life itself under his breath during the high school

  16. power in the hands of one person leads to that person thinking himself to be a god.And power in the hands of an unaccountable bunch of bureaucrats such as the ones in the EU – a committee of gods? a pagan pre-Christian system of gods?I think we will forever swing between a state of quasi-tyranny and quasi-freedom, as perfection is not within the human realm.

  17. Interesting Michael… The civil service (or my department at any rate) has embraced the working from home model- it was actively encouraged over the Olympics- to the point where I had to justify coming into the office! To provide flexible working- and for it to be taken up- I think requires senior managers to embrace the idea. It is so so convenient though for things like dentists appointments, going to the doctor, picking up kids from school etc… But there’s definitely a culture sometimes of convenience = laziness which needs to be overcome.

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  22. Thank you very much for this posting,yet another that I feel the need to come back to. I wonder how long it takes to really become conscious of the thoughts-are-things chain of causes and effects enough to change one’s reality at the level of thought? Well we are all constantly doing this, true. But then, as stated in the Secret Doctrine, “checked by karma”…ahhh…NAMASTE ALL!

  23. Mi rifiuto di credere che quella roba lì, messa in uno scatolone di cartone, sia commestibile.A me ha fatto pensare a delle foto che avevo visto in giro, dove venivano mostrati metodi di isolamento termico basati sull'iniezione di "schiume" all'interno delle intercapedini dei muri.Forse però questa pasta sarebbe un po' troppo densa per lo scopo..

  24. Hah. Yeah but it’s one of those things that spirals out of control. It gets quoted in articles, then you see things like “fucken nintendo” and “Wii U = Dreamcast” in the comments and now everyone wants to tell their friend the latest reason why Nintendo is doomed.

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  29. and had conversations about the movie they were watching, and not the theater they were at?  Miso does that.  Released to the Android Market  in 1.0 form just this morning, the check-in app lets you share

  30. Rachael,Tonight’s class is $50.Also… our marketing director (me) is being reprimanded as we speak. He posted both 6pm and 6:30pm start times for the class tonight in different medium.sWe will begin the class at 6:30pm.All apologies for the confusion.

  31. I'm so glad I stumbled upon this post. I'm an independant and lately have felt like I needed somewhere to go other than my house. I often find myself at coffee shops but as you mentioned, not the ideal location. I'm going to check out my location, see if there are any nearby. Wish I had the capital to open my own, great idea.

  32. The Situation is so fucking stupid. Biggest retards to ever hit Reality TV! I wonder what was going through the producers mind when he or she signed these idiots on and paid them $30k+ an episode just to embarrass themselves.

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  34. And because most “normal” people don’t know what “key” to fit in our doors, and don’t believe us when we tell them what kind of key works best, WE 30%-ers ( ranging from severely different autism, to almost the same as the rest kind of autism ) are labeled “wrong”“wrong” in any truthful philosophy just means “different from my point of view”but the rules of perspective tell us that no ONE perspective can be more correct than the other.So in reality, nobody can be wrong OR right, just BE


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  38. Hallo Andy,das Treffen fand ich mal so richtig gelungen, auch wenn ich nicht bis zum Schluss bleiben konnte. Tolle Idee von den Jungs & Mädels von SMA. I like it….


  40. I don`t understand people like that at all…. I have spent numerous vacations in Vancouver and Vancouver Island and that is one of the things that I liked about it and the people of course. I live in Germany and the cities here are also very clean and tidy, the only problem is with dog poop, they haven`t got their act together yet about cleaning that up.

  41. I don’t want to hurt you Stennie.  I just wondered why the kid was so cross-eyed creepy.  And Alan Ladd was fine, he just didn’t turn human until he became a baddass.  As the goody two-shoes, he kind of fell flat.  Great hair, though.

  42. Really interesting post, Gillian, and I am in awe of people who have soundtracks to their writing or to a specific book. I’m one of those writers (surely there must be more then me?) who don’t have a sound track to any book, other than sound effects. Writing comes to me visually. For me, if there’s any music, it messes up the rhythm of the words for me, tries to control the emotions and the pace, and furthermore I can’t hear what my characters are saying. I do like music, and it annoys me that I can’t manage the two together. Now, if I was an illustrator . . .

  43. Hey Kristian! “Mark” was really sold out for the Lord to come “accross the grass” and borrow your pink frying pan 😉 Just joking. When you allow yourself to be used by God when you feel you’re at your lowest, demonstrates a selflessness that lets God know that He is in total control.

  44. If Nielsen sees his site as a place to generate leads for his consulting, however, he needs to be concerned with both usability *and* user experience. Otherwise, he should build one site for his articles and one site for his business!

  45. My "combat pistol" course back in 1980 was some 750 rounds in three days and one no-lights night session. A bit tiring but not bad.With practice, shot-reload-shot with a 1911 is quite doable in one second. Dry firing at home, I'd stand behind the couch for the sake of magazine lips and point/click/reload on the talking heads on the TV. Front sight, press and DVC…Art

  46. ik heb jaren geleden voor het eerst natural glo op de huishoudbeurs geprobeerd en was meteen verkocht ik heb nog nooit zo’n goede natuurlijk uitziende poeder gehad ( en ik heb er wat geprobeerd) niets dan lof voor jullie produkten. ik gebruik het nu meer dan 10 jaar vr gr antoinette

  47. grocery spending. We are down a significant amount this month thanks to eating what we have. After I organized our freezer last weekend, I realized that we could and should probably continue this challenge into

  48. Wow Isa, look at all of those responses to that stupid article! There's nothing left for me to say except, how stupid is it to hate fashion? Anyways, I love your "sequins & tie-dye meets mormon" look.

  49. Menuda mierda mas hipocrita as puesto aki yo me quede parado cuando estaba zp y mira que ya estaba mal el pais y nadie se quejaba, ahora vienen otros intentan tapar por todos los medios el agujero k ns an dejao el psoe (ojo k creo ke se han equivocado en lo del iva) son los malos de la peli, ya puestos hablar de gentuza dnd esta zapatero? Escondido cobrando una millonada tods los meses vete y pidele escusas a ese y preguntale de paso porque ha despilfarrado todo el dinero de españa

  50. hiya Mandy its Macka my mummy is your friend Kenzie, i love your cards and think you make them so brillantly, i love the tilda in her skates she looks really cute, i put my card on make it monday too like you, hope you get better soon i have been poorly its horrible being sick so hope you can feel better very quicker bye love from Macka age 6 xxxxx

  51. bung mokhtar kawin no 2 xde izin 1st wife xde benda pun. org BN semua kebal… buat apapun xpernah nak bersalah…. apa BN buat semuanya BETUL. pembangkang buat benda betul pun SALAH bg BN…. makin lama makin bangkrap lah malaysia sbb dok berlian 24 juta, tukang mekap dpt jam 6ribu hengget lah kasut smp 3ribu hengget .. semua duit rakyat tp BN yg enjoy. rakyat jd papa kedana ……….. HIDUP BN DI DUNIA ! TERIMA HABUAN DI AKHIRAT !Well-loved.

  52. varför lägger du bara ut gamla bilder å gamla videos på din blogg??! Det är ju bara samma gamla bilder som går om och om igen.. dessutom skriver du ganska osammanhängande i dina inlägg.. har du tappat motivationen att blogga?

  53. Well of course the debut of this dog’s dinner is not worth the destruction of B.I.Shadow (if that is indeed the case)……but no point in losing any sleep over it, as the formation of JE groups has no rhyme or reason other than what tasty morsels float the Old Kaiju’s boat at the time……We can all name at least 10 Jrs off the top of our heads that would be more capable than this lot (Kento and Fuma excepted)….The only mystery is, having gone for the zero-experience tots, how could he possibly have left out Kaoru?!……..

  54. evviva!!!!! · giovedì, 6 dicembre 2012, 2:19 pmPassera pareva un ministro tagliato fuori da ogni gioco futuro ma alla fine è stato lui a compiere l’atto politico di rottura con la destraCome topi dalle fogne, peones d’ogni rango si sentono in diritto di sparare qualunque minchiata. Vale la pena di ricordare che Monti stava pensando in questi giorni a come distruggere la sanità pubblica. Berlusconi lavora per se stesso, ma chiunque riesca a fermare l’opera demolitoria di Monti oggi va elogiato.

  55. Gokväll alla!Ett tips till alla hundälskande pälsallergiker…Lagotto romagnolo (italiensk tryffelhund). Min man är jätte allergisk, men vi provlÃ¥nade en Lagotto en vecka och det fungerande utmärk! det gäller säkert inte alla allergiker men kan vara värt ett försök, dessutom fäller de inget hÃ¥r till min stora glädje!Googla pÃ¥ rasen ,de är underbara. Perfekta familjehundar med trevligt lynne.Trevlig kväll..Annsofie

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  62. Aggiungo, riprendendo quanto diceva Stefano, che il seguire la propria casa editoriale che si è creata per auto prodursi potrebbe sicuramente distogliere energie e tempo all’autore; ci possono essere autori bravi nello scrivere e nel manutentere tutte le attività propedeutiche per la casa editrice propria, e altri che a parte scrivere, non vogliono per nulla interessarsi a tutti quegli aspetti…Alla fine credo dipenda esclusivamente da cosa vuol/può fare l’autore, no?


  64. Wow I never thought of that angle, that people would have the freedom to start businesses because they would have healthcare. good observation. I live in Canada, and I have to tell you that thought never entered my mind when I started my business. If I had done without H/C, and started anyway, when I had my back injury one year, then pneumonia the next, which both required hospital stays, I probably would be bankrupt, and lost everything! Repubs are literally evil.

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