Ups en downs

Vandaag weer een controle gehad bij de hematoloog. De Graft (afstotingsverschijnsel) aan mijn huid is jammer genoeg niet minder geworden, maar gelukkig geen last van mijn darmen. Wel is mijn huid door de Graft donkerder gekleurd en is nu ook mijn mond (slijmvlies) gedeeltelijk aangetast. 

Ik heb “een gezonde kleur” gekregen door de afstotingsverschijnselen. Net alsof ik 2 weken naar een zonnige bestemming ben geweest. Heb er ook veel opmerkingen over gekregen. Zoals de hematoloog zei “beter dat ze zeggen wat zie je er goed uit, dan dat ze zeggen wat zie jij er beroerd uit”. Waarschijnlijk blijft deze verkleuring zo. Ontstekingsreactie en pigmentvorming. De uitslag zit er nog steeds en gaat ondanks de medicijnen (prednison en Neoral/cyclosporine) nog niet weg. Nu is daar uitslag in mijn mond bij gekomen. Ik hoop echt dat dit niet erger wordt. 

De prednison zijn we aan het afbouwen. Absoluut noodzakelijk in verband met de bijwerkingen, maar goh wat is dat jammer. Nu pas realiseer ik me dat ik 2,5 week lang veel meer energie heb gehad. Absoluut door de prednison. Een week 70 mg per dag, toen een week 40 mg en nu afbouwen met 5 mg per 3 dagen. Ik zit nu op 20 mg en dat verschil voel ik heel goed. Langzaam aan neemt de energie af. Ik slaap weer meer overdag, beweeg moeilijker (lopen/opstaan/traplopen) en voel me minder fit. Het is niet anders. Ik zal er aan moeten wennen dat dit toch wel de toekomst zal zijn. Maar, ik ben er nog en we genieten van iedere dag. 

In dit blog ook nog heel goed nieuws, hoor! Mijn bloedwaarden stijgen door! Het beenmerg is echt aangeslagen en er worden veel bloedcellen geproduceerd. Dat gaat echt goed. De hematoloog is daarover heel tevreden. 
Hb vandaag      8,4, (rode cellen normaal 8,5-11,5)
Trombocyten    128 (plaatjes normaal 150-450)
Leukocyten       5,4 (witte cellen normaal 4-10)

De hematoloog zei het bij het verlaten van de spreekkamer nog “we zijn er nog niet”. Ook al stijgen mijn bloedwaarden nu snel en is dat natuurlijk het nieuws dat je wilt horen, we maken ons met elkaar wel zorgen over de vermoeidheid en de Graft, zeker nu ook mijn mond problemen gaat geven en de uitslag op mijn huid niet verdwijnt.

3.059 gedachten over “Ups en downs

  1. I took mine down back in January but was wondering how that effected people? But now I’m wondering if that had something to do with my loss in traffic. A friend of mine said my feed stopped showing in Google Reader after that but I thought GFC and Google Reader were two different things?

  2. Yeah, well…until the neocons vacate public discourse, I’ll be completely uninterested in what conservatives or Conservatives have to say about freedom and rights.Another ad hominem remark. Can’t win a debate, so attack the character of the one (or those) making it.

  3. Really trustworthy blog. Please keep updating with great posts like this one. I have booked marked your site and am about to email it to a few friends of mine that I know would enjoy reading..

  4. Luc Lemaire dit :J’ai du mal à comprendre ces interrogations. L’article est clair : « La première tranche qui démarrera au courant de ce mois et dont la durée est fixée à environ 12 mois (…) Les premiers flux électriques seront mis sur le réseau en 2013. » Faut-il vous donner les jour ouvrés pour les ouvriers ?

  5. sunt inconstienti. cunosc pe cineva care si-a facut analize pentru ca nu se simte bine. ce au descoperit aia i-a socat: femeia avea colesterolul de 3 ori peste limita admisa. de 3 ori! aia se mirau cum de mai traieste. au pus-o pe cura imediat. cine crezi ca se plangea ca doctorii sunt duri sie xigenti si impotriva noastra? exact, mama colesterol de mai sus. trist.

  6. Hola, no se si alguien más lo comentó porque no quise leer todos los comentarios, pero la isadora andaba vestida igual que isodoro jajajajja .. .ese es mi aporte, muy buena temporada, éxito!!

  7.  ( 2012.03.8 14:59 ) : Thanks for your article. What I want to point out is that when looking for a good on the net electronics retail outlet, look for a web site with total information on key elements such as the security statement, basic safety details, payment procedures, and other terms as well as policies. Constantly take time to look at help and FAQ areas to get a far better idea of the way the shop is effective, what they can perform for you, and ways in which you can make the most of the features.

  8. Cierto. Pero si te fijas, eso ya lo dije en la nota previa antes de la traducción. Porque se trata de otro tema de Bowie que ya había traducido también. Un saludo y gracias por el interés.[]

  9. Do you mind if I quote a couple of your articles as long as I provide credit and sources back to your website? My blog site is in the very same niche as yours and my users would truly benefit from a lot of the information you present here. Please let me know if this ok with you. Thanks!

  10. Sinceramente Rodrigo conseguiste avergonzarme. No es que haya sido una fanatica de Magneto pero sí ví la pelicula y oía sus discos. Cuando ví el último video sentí como un apretujón en el estomago y me dió ataque de risa. Casi me sentí tan ridicula como ellos al cantar esas canciones. Esta sección tuya es de las que más me gusta. Aprendo muchas cosas del Youtube.

  11. Добрый вечер! 10 дней назад удалили лапароскопическим путем желчный(камень) сейчас болит в правом боку как при камне…что посоветуете?

  12. Como la persona a la que se refiere el comentario, también yo pensaba que de alguna manera la ansiedad se trasmitía. Mi madre estaba llena de miedos, por todo, le diagnosticaron ansiedad generalizada. Igualmente mi padre era hipocondríaco, no le digo como he vivido… Yo también tengo ansiedad y siempre he pensado que con esos antecedentes no podía ser de otra manera. ¿No se trasmite ningún tipo de ansiedad?

  13. The Maykop Culture might have spoken an IE language, which they spread first to Central, then Western Europe.This would probably satisfy Dienekes's requirement that IE's spread had to be via a demic expansion of farmers?!

  14. 13 de noviembre Intérpretes: Jim Carrey, Gary Oldman, Colin Firth, Cary Elwes, Robin Wright Penn Cuento de Navidad, tráiler español Disney’s a Christmas Carol: póster y primer clip Cuento de Navidad, cine para toda la familia

  15. Finished Crusade. Reading Cursed now so I can catch up to Vanquished commentary. I feel so sorry for Antonio. Jenn is lashing out at him because of her pain over Heather. Can ‘t put it down.

  16. Marsha Adams – Mike & Hollie – These photos are such a statement of how you truly are, “so relaxed in love”. A perfect “precursor” to the wedding! I can hardly wait…Love, MomMay 6, 2010 – 12:59 pm

  17. “[…] Designstile, an dem (sic!) sich Apple ausgerichtet hat.” “dass Apple sich dieser Desingregeln angeommen hat “: das hört sich ja aber doch sehr beschwichtigend an.Für das, was Apple mit den Rams-Designs gemacht hat, verklagen sie gerade massiv andere Wettbewerber. Für mich ist das mehr als dreist.

  18. I would love a Sharon Montrose print! We’re having our second baby in July and I’m dreaming of a nursery centered around a few of her baby animal pieces. We own her book now and my two year old can’t get enough of it!

  19. / Hello there! This is kind of off topic but I need some help from an established blog. Is it hard to set up your own blog? I’m not very techincal but I can figure things out pretty fast. I’m thinking about creating my own but I’m not sure where to start. Do you have any points or suggestions? Thanks

  20. Very nice post. I just stumbled upon your weblog and wished to say that I’ve really enjoyed surfing around your blog posts. In any case I will be subscribing to your feed and I hope you write again very soon!

  21. It is the best time to make some plans for the future and it’s time to be happy. I have read this post and if I could I want to suggest you some interesting things or suggestions. Maybe you can write next articles referring to this article. I desire to read more things about it!

  22. Als water op is, Dan zal men niet delen Als zand op is, Dan zal men ‘t bij de buren stelen Als … Licht te stelen is, Dan wordt iedereen blind, Nietwaar? Ziek volk in een zieke wereld. BP komt er ook mee weg, let maar op. 1.000 miljard dollar om ‘terrorisme’ te promoten en geen dollar voor de vrede.

  23. I’m just commenting to let you know what a excellent encounter my daughter undergone viewing your webblog. She picked up a wide variety of issues, with the inclusion of what it’s like to possess a great teaching mindset to make other people easily completely grasp certain specialized topics. You undoubtedly did more than our desires. Thank you for supplying such warm and friendly, dependable, revealing as well as cool guidance on that topic to Emily.

  24. If you have no inbound links toward www3, www4 and www5 and these domains are not useful to search engine users, then you lose nothing in using a noindex metatag or, even better, put restrictions in your robots.txt file and they will not get indexed. The only advantage of the canonical tag is that it allows a consolidation of the link properties.

  25. Have you ever thought about adding a little bit more than just your articles? I mean, what you say is important and everything. However imagine if you added some great visuals or video clips to give your posts more, “pop”! Your content is excellent but with images and clips, this site could undeniably be one of the best in its niche. Good blog!

  26. Thanks for this post about Smithwoods RV Park – we’re heading down in about a month to move our daughter into the dorms at UCSC and your WONDERFUL description and video of the park has us sold!! We’re looking forward to seeing it for ourselvesDan & Christiana Shaw

  27. We are planning to hold public workshops in the fall in various locations around the City (TBD) to present the results of the “” Activity Kit outreach. The Activity Kits have been sent to each neighborhood council, including those in South LA. We are also working with our community partners in South LA on outreach.

  28. ARE A SICK DEMENTED NITWIT. I PITY YOU, BECAUSE YOUR KIND ENDS UP IN PRISON FOR MANY YEARS, UNWILLING TO ACCEPT RESPONSIBILITY FOR THE ERROR OF YOUR WAYS…IN FACT YOU HAVE NO CLUE HOW EVIL YOU ARE TO SOCIETY.DIAGNOSIS: SOCIOPATHY. LESSON: CRIMES DON'T PAY.IF YOU WANT TO ESCAPE CONVICTION AND INCARCERATION,GO BACK TO YOUR COUNTRY AND GET THE HELL OUTA DODGE, YOU S-O-B!!

  29. Lubos, do you not add any sugar to the egg whites? I imagine it’s sweet enough without. Just curious. I think this dish will make it to our family reunion next summer.

  30. I have seen lots of anti-global warming videos (either by or supporting leading authorities in this area (even people high up in greenpeace dont support human-caused global warming)) and if you go back millions of years we are actually a lot colder than the earth has been, the temperature tends to go Warm, then Ice Age, than warm then ice age (note these changes happen over many years). Al Gore is just trying to get votes by pretending to care.

  31. Anche se 'sta roba non è davvero nei nuggets, sappiate che i bocconcini sono trattati con varie sostanze chimiche (per esaltare la doratura ecc.) di cui una, oltre un certo livello imposto dalla FDA, letale. Apparentemente sono il McProdotto più semplice, e invece…Fonte: Michael Pollan, "Il dilemma dell'onnivoro".

  32. You know, I often use that station and I always pass by that car and to be honest, I never even thought to myself, "Wow, how did they get that down here." (And most people don't seem to care either.) Goes to show how long I've been here…ha ha.By the way, cool pic of the construction.

  33. I’m truly enjoying the design and layout of your blog. It’s a very easy on the eyes which makes it much more pleasant for me to come here and visit more often. Did you hire out a developer to create your theme? Fantastic work!

  34. hi Mam this is yoga priya from tiruppuri seen that your design its amazing i and i am very interesting on that if you can able to train me or guide me pls iam waiting for kind reply

  35. apuntó también que la escuela tucumana no puedo negar a los chicos su escolarización por el no pago del seguro y la cooperadora, ya que eso “viola  la Constitución Nacional; La Declaración Universal de

  36. Monica Luce / SensiMani che cercano le tue manida sfiorare dolcementeper fermare il tremoredi noi impauriti da questo troppo amore.Occhi che cercano i tuoi occhida scrutare per leggerti l’animai quali mi mostrerannoquesto sentimentoLabbra che cercano le tue labbraper un bacio intenso dove potertiassaporare.Corpo che cerca il tuo corpoper diventare uno sololasciandoci trasportare dai nostri sensiaccetto il regolamento

  37. I am certainly thankful to you for providing us with this invaluable info. My spouse and I are truthfully grateful, precisely the computer data we needed.Nice information, many thanks to the author. It is incomprehensible to me now, but in general, the usefulness and significance is overwhelming. Thanks again and good luck!

  38. Hey there! I could have sworn I’ve been to this blog before but after browsing through some of the post I realized it’s new to me. Anyhow, I’m definitely delighted I found it and I’ll be book-marking and checking back frequently!

  39. Ivy AlongAugust 23, 2010 at 5:59 pmBig smile. I didn’t know anyone else was as paranoid about hard drives and info as I. I’ve contended for several years that our Nat’l Security should be turned over to packaging people. It is very nearly impossible to extract a CD from its packaging and most other items are packaged in such a way that I require a sharp knife, good scissors, and probably a screwdriver to finally free the item enclosed. Sheesh!

  40. Minden ugyan úgy van mint mikor leállt az oldal(több száz gigányi pakk) csak rá kell nyomni a kényszerített indításra A visszaszámolásról meg annyit, hogy ez a megszokott eNkóór mi így szoktuk meg és nem is szeretnénk hogy ez megváltozzon:DKöszi Srácok a rengeteg fáradozást és pénzt amit belefektettetek TÉNYLEG NAGYOSZÉPEN KÖSZÖNÖM!!!

  41. Meridia…Can I just say what a relief to find someone who actually knows what theyre talking about on the internet. You definitely know how to bring an issue to light and make it important. More people need to read this and understand this side of the story. I …

  42. Cara Cristina, deixa que discorde contigo. Gastar dinheiro em construir de novo monumentos num país onde há milhares de monumentos a cair de podre é mais um sinal de novo-riquismo balofo.A cidade histórica de Moscovo está a ser destruída diariamente e esse tipo de iniciativas é propaganda populista. Por este andar, transformam esta cidade numa espécie de Disneylandia do mau gosto.

  43. Sincerely Moos i have no words to thank you enough for granting my request so soon.This one has brought back live memories of my high school days.i surely will have a happy dancing weekend.U R the best and so kind. 'Asante sana' MoosJ.M./Nairobi.

  44. Ciut tej radości dodam do tej, którą mam. Zrobi się dużo!Piękne życzenie, dziękuję.Tamte odejścia synów na wojnę, dziś wyjazdy do pracy za granicę.Odejścia niby różne, a jednak takie same. Budzą takie same uczucia, w każdej epoce.Życzę przyjemności słuchania!Na dobry wieczór.

  45. Shaula, following you and your twins on your East Timor 1/2 island adventure, has been such a treat! I’m looking forward to reading about what Jakarta will bring for you and your family. And I’m so loving that another piece of the World Moms Blog family will meet offline — I hear you have plans to meet Maureen of Tatterscoops in Indonesia! So exciting!!!Jen

  46. Have you ever considered about including a little bit more than just your articles? I mean, what you say is important and all. But think about if you added some great pictures or videos to give your posts more, “pop”! Your content is excellent but with images and videos, this site could undeniably be one of the very best in its field. Amazing blog!

  47. Greetings from Colorado! I’m bored at work so I decided to check out your website on my iphone during lunch break. I really like the info you provide here and can’t wait to take a look when I get home. I’m amazed at how quick your blog loaded on my phone .. I’m not even using WIFI, just 3G .. Anyways, wonderful site!

  48. I do agree with all the ideas you have presented in your post. They are really convincing and will definitely work. Still, the posts are too short for novices. Could you please extend them a bit from next time? Thanks for the post.

  49. certo che se per caricare la canzone sull’ipod, invece di collegarlo al computer, glielo accosti di lato e speri che prima o poi la canzone si carichi per osmosi, stai fresco..

  50. Je viens justement de faire ma première commande chez Net à Porter… c’était trop tentant avec les soldes… mais les frais de port, pfffffffffffff!!! Fan de ton sac, il est trop bôôôôôô ;o))) bizzz

  51. Hi Warrior-I’ve tried it a few times (including just yesterday) and when not in swim mode and in the cap, it shows the same (accurate) distance. I havne’t tried swim-mode in the cap, as I get super-accurate distances otherwise. The way swim mode works though, it wouldn’t likely make it any better, as it’s simply looking at the non-dropped data points and averaging them (super-high level explanation). Only in cases where you see a lot of dropped data points would it possibly improve it.

  52. Pois é Dr Osmar, o negócio é torcer contra mesmo, pois depender só das forças do meu Vascão não dá mais. Agora, pô Dr. Osmar, respeito muito suas opiniões, mas dizer que vai torcer contra o Santos só pq o Goleiro do Santos disse que vai torcer pro Vasco? O mínimo de imparcialidade seria ótimo 🙂 Grande abraço e parabéns pelas sensatas opiniões, exceto essa citada, hehe…

  53. tu as peut être raté le passage ou on avait dit que les meilleures citations fantaisistes seraient mises à l’honneur et comme tu as été le premier a lancer celle là, les honneurs te revenaient naturellement mais si tu veux absolument un coupable, c’est guillaume ! je sors très vite et je vais me cacher !

  54. Actually, I believe some rim drive machines do have AC bias. For example, the dictation machines ( all rim drive, of course) usually have AC bias. But a cheapie like this, nah, never happen. Still, it is SO pretty!

  55. Ah Kajuru, se metade da crônica esportiva tivesse metade da sua transparência as coisas seriam bem melhores…Só discordo de você ter pedido desculpas ao Citadini ele virou santo? Tem muita gente por aí (Juca) que esquece bem fácil de muitas coisas cabeludas que alguns dizem por aí, ou você já se esqueceu que ele era o braço direito do Dualib no anos Kia? O Juca gosta muito de proteger o Citadini, não sei não….Tudo de bom para você Kajuru!!!Provos Brasil

  56. Hi Scott,If you are not legal in the UK, chances are if you win the lottery you will be required to attend the interview at a US consulate in Nigeria which seems to be your home country. You will have to include your son on the application definitely as failing to declare any non US citizen children, can immediately disqualify you. Your girlfriend should only be on your application in you get married prior to application. If not she maybe should apply separately if she is eligible.Good Luck,CJ

  57. Please let me know if you’re looking for a article writer for your weblog. You have some really good posts and I feel I would be a good asset. If you ever want to take some of the load off, I’d really like to write some material for your blog in exchange for a link back to mine. Please blast me an email if interested. Regards!

  58. Missed you up there… I talk about “daring to transgress” a bunch. I come at much of this work thinking like an artist and poet, and I find that transgression is necessary to forward though, or, to get away from the “marching always forward” metaphor, transgression is necessary to engage the mystery, calling it out. I may very well talk about this art/transgression/mystery thing next. I’m a fan.

  59. How the heck did you figure out the patterning? I absolutely love the rugs, and would totally attempt to make one of my own, however I am not sure how to figure the pattern… Suggestions?

  60. AOL was intriguing at first and better than Prodigy. I never bothered with it later when I let AOL install a toolbar or insinuate itself somehow in the operation of my browser. It took over in a big way and tried to make everything go through AOL. It was infuriating and not at all what I expected.Bad idea that generated nothing but hostility on my part.

  61. Mohu se jen pÅ™idat k prvnímu i dalším příspÄ›vkům. Klause sice fakt nemusím, ale to, že Tupolánek je “tupý a prázdný” bylo velmi trefné a pÅ™edvídavé… asi už vÄ›dÄ›l, s kým má tu čest:)

  62. Hallo,vielen Dank für das schöne Tutorial.Wie kann ich die TableView ohne Table View Controller realisieren und stattdessen einen normalen ViewController nutzen?Vielen Dank

  63. Njä.. jag känner också spontant att det där är nog inget för mig. Jag som knappt bär smycken överhuvudtaget, folk skulle tro att jag blivit lite wacko.. hehe. Men håller med om att de där armbanden kan visst vara coola i rätt sammanhang. Zebragrejen kanske vore skojig..? Hm. Som sagt, roligt med kreativa påhittiga designers! Kram

  64. / As services are provided, and credit is given for the first place many entrepreneurs go to. This is a necessary step to obtaining a property insurance policy for banks and institutions so that they can’t really afford, and then the business assets.

  65. tu lo dejaste en modo dfu para recuperarlo tienes que conectarlo con tu pc, en itunes abrelo teniendo conectado el ipod o iphone y te aparesera un icono q te dira si deseas restaurarlo y le pones aceptar y listo

  66. Så bra! Det er fint når man er med på noe som man i utgangspunktet gjør kun for ungenes del, og så viser det seg at det faktisk er ålreit for foreldrene også:)

  67.  Business Cycle Drivers  by derryl Share this Econintersect Article: This entry was posted in Great Debate©, Studies and tagged austerity, Ben Broadbent, CEPR, Dean Baker, Kevin Daly, recovery. Bookmark the permalink. ← Construction Spending up in September

  68. That picture is WICKED cool! There are definately certain parts of a wedding that pictures just can't capture- speeches/toasts, vows, the songs your band played, and the special words your friends and family slur into the camera Good blog

  69. I liked 1984 although I was worried about all the synth stuff. Saw them in Peoria on 1984 tour and they were nowhere near as good as on Diver Down in St. Louis.Running With The Devil/Eruption-You Really Got Me/Aint Talking About Love/I’mThe One/Jamie’s Crying/Atomic Punk/Feel Your Love Tonight/Little Dreamer/Ice Cream Man/On Fire …. hot damn! I am — no kidding — putting the CD in as soon as I post this. Time to rock!

  70. PDR Yemen’s ‘radical’ departure in selecting orange & blue for its flag, must have cursed the country….It no longer exists as an independent state. Great article – I always wondered why so many of the Arab states had the same colours.

  71. maybe she's saying, "mummy, let me clean you up first (gorge gorge, dig dig)" then mumbles, "mummy you have to pom pom like me before you go bed bed, i'm so worried about you (grunt grunt)"…let me clean you up somemore…[repeats]

  72. Her har du virkelig slÃ¥tt til ja..ser du har hatt skikkelig trøbbel om dagene…og at det har gÃ¥tt innpÃ¥ deg…noe jeg sannelig forstÃ¥r…det er ikke berre berre…men vi fÃ¥r da hÃ¥pe det retter seg opp igjen her..etterhver..for ellers blir det slitsomme sommerdager fremover..Kjempefint innlegg…lattermusklene fikk trent litt her ja..he he

  73. Mozilla nie zrezygnowaÅ‚a z poprzedniego, format Apple’a (Sherlock) jest nadal obsÅ‚ugiwany, tak samo jak OpenSearch. Stanąć warto. Ale to nie mnie musisz przekonać. :)Z drugiej strony, jak widzisz , użytkownicy Opery uważajÄ… to za “bezużyteczne”.

  74. , or get lost in the comments others wrote and comment on the comments rather than the original post.I do not write for a blog that sells things. I write in order to share of myself in the hopes that whoever reads will find my words either helpful, or thought provoking. The sharing of knowledge is important to me and I truly appreciate that you have shared these tidbits of advice to others.Thank you,

  75. Chris,This is one of my favorite things to do in EQ7. I have used this simple block when we did a BOM exchange at guild and got 24 possible layouts with the touch of a button. I am happy to post some of your block done like this as TIFFs or GIF if you like.

  76. oct31Administrator ¡Enhorabuena, Diego!La verdad es que es una vía muy sencilla salvo un par de tramos. Pero sea como fuere, yo no diría que tanto como para hacerla con “cletas”. Lo que, por otro lado, hoy por hoy sería una chulería o, al menos, una excentricidad innecesaria.Lástima no haber podido estar allí al final como me habría gustado. Parece que fue un gran día.¡Buenas escaladas!

  77. Pingback: special
  78. Pingback: Blonde chat
  79. I was recommended this website by my cousin. I’m not sure
    whether this post is written by him as nobody else know such detailed about my
    problem. You are wonderful! Thanks!

  80. My brother recommended I may like this web site. He was totally right.

    This publish truly made my day. You cann’t believe
    simply how so much time I had spent for this info! Thank you!

Reacties zijn gesloten.